Responding to the Evolving Treatment Paradigm for Myelofibrosis: Narratives in Collaboration

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1.0 Credit

Release Date: 12/20/2019 | Expiration Date: 12/19/2020

Estimated time to complete activity: 1.0 hour


In this CE/CME-certified activity you'll find a full-length JADPRO article on the role of the advanced practitioner in treating patients with myelofibrosis (MF). You'll also note several short videos featuring the author, Karen Schiavo, ARNP, AOCNP®, of Seattle Cancer Care Alliance, speaking with Lynn P., one of her patients living with MF. Don't miss a bonus Q&A session between Ms. Schiavo and JADPRO's Editor-in Chief, an Appendix that highlights the numerous risk stratification tools currently in use, and links to valuable resources for both patients and advanced practitioners. 

Faculty

Karen M. Schiavo ARNP, AOCNP®
Seattle Cancer Care Alliance

Guest

Lynn P.
Patient
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Q&A With the Editor-in-Chief of JADPRO

In a bonus interview, Pamela Hallquist Viale, Editor-in-Chief of JADPRO, talks with author Karen Schiavo about what APs can do to best support their patients with MF.

Resources

For Patients

MPN10 Know Your Score
An app that enables patients to keep track of their MF symptoms.

Voices of MPN
A website devoted to raising awareness of myelofibrosis and other myeloproliferative neoplasms.

MPN Research Foundation
A 501(c)3 non-profit organization dedicated to stimulating original research in pursuit of new treatments for MF, PV, and ET. Based in Chicago. Follow on Twitter @MPN-RF.

Josie - MPN Advocate
@MPNAdvocate
Twitter account of an Australian social worker who is also an MPN patient.

MPN Advocates Network
Website of an organization in Switzerland that aims to create a global network of MPN patient groups. New members welcome.

Patient Power: Myeloproliferative Neoplasms
Website dedicated to empowering patients with cancer. Offers a section on myeloproliferative neoplasms. The co-founder, Andrew Schorr, has myelofibrosis.



For Advanced Practitioners

Ruben A. Mesa MD

@mpdrc
Twitter feed of this prominent clinical research specialist at UT Health San Antonio, Texas.

Research Outputs
Recent publications by this prolific author of research-based journal articles on myelofibrosis.

Bart Scott, MD

Myeloproliferative Neoplasms
Portal page offering a variety of recorded video programs featuring the director of hematology and hematologic malignancies at the Seattle Cancer Care Alliance.

Srdan Verstovsek, MD, PhD

Selected Publications
Recent publications by another prolific author of research-based journal articles on myelofibrosis.

Additional Resources

Myelofibrosis Clinical Trials
An online listing of myelofibrosis research trials actively recruiting patient volunteers.

MPN Clinical Trials
An online listing of myelofibrosis clinical trials. Hosted by the MPN Research Foundation.

MPN Connect
Website offering expert consultation to US healthcare professionals.

NCCN Guidelines
Updated at least annually, these guidelines provide detailed clinical guidance for members of the primary oncology care team, including an entire page of supportive care recommendations.


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